Age: 19 Sex: Male Height: 5'9" Weight: 145 Race: Caucasian Duration of complaint 3 years Location (Geographic and on body): Kidneys and Flank existing relevant medical issues: Iga Neuropathy, Loin Pain Hematuria Syndrome Current medications (if any): Effexor, Enalapril, Amitriptyline I have suffered from chronic pain for around 3 years now I have been to the ER inclusive of today 59 times in the past two years and my first year being diagnosed 8 times. The Iga is monitored by a nephrologist yearly with a Creatine of around 1 with spikes up to 1.6 rare amounts of protein leakage with regular dipsticks in Urine of 1+ to 3+, 1-4, 11+ P/HPF. I have been to dozens of doctors for the pain side of this which is not normal in Iga or TBM and I was diagnosed 2 years ago by a different doctor who in fear of a biopsy deemed it LPHS (Loin Pain Hematuria Syndrome) from the Cleveland Clinic only seeing a few cases in his practice as a nephrologist. I am in constant pain and often have to go to the hospital to be treated for nausea which is subsided by Zofran effectively but the pain only subsides with an analgesic E.x(Ketamine). The doctors are familiar with me in the ER at this point that I am treated quickly and released while I'm in twilight for an hour or two until the pain subsides. My attacks at the beginning of the diagnosis were infrequent only every few months, inclusive of gross hematuria and loin pain. Now the attacks are up to a few times a week and the pain reaches a new level each time. Even on Fentanyl, I broke through in 30 minutes and still in pain during administration. I am not a drug user and have never taken a medication unprescribed to me other than marijuana a few times 6 years ago and have not used since. I have exhausted all of my resources but the doctors I've seen have little knowledge of my condition or refuse to treat me and I quote from one, "I am afraid if I treat you with an opioid or analgesic of the legal consequences". I have documentation from each of my doctors saying the will not treat me with an attached or no referral. I desperately need help and as a last resort turn to the internet hive mind to hopefully give me some answers. I was just seen by a PCP in my practice and she had said there is nothing she can do or prescribe and wanted me to go to the ER knowing full well hematuria is an often symptom but was "Concerned by the blood". I do not wish to become addicted to something but living my life crippled by a disease that requires constant hospitalization is in my mind worse than any pill. The pills I have been previously given were all GABA receptor medications that had no effectiveness and gabapentin gave me a seizure and I was required to be hospitalized for it. I feel like a lab rat that is just waiting for a cure but living in torture until the time comes. I have little sympathy from doctors or hospital staff and have had dozens of tests done (MRI, CAT, CT, UROSCOPE, etc.) but they have turned up nothing other than the underlying conditions. They keep testing but won't treat. They have ruled out non-Glomeruli bleeding and again explain that the pain is LPHS and officially diagnosed this. I know I've been repetitive in this but I really want to drive the point home that I don't know where to go or what questions I should be asking. My pain is almost a new 10 every time this happens. The only medication I’ve been given that’s been effective at therapeutic treatment has been ketamine or a similar NMDA antagonist. What I really getting why I can’t seem to get medication to help me, is it political, social or just because of my age and condition? I would rather live than be a slave to my health, that’s not living.