Harlequin ichthyosis
A infant with a rare genetic disorder called Harlequin ichthyosis, which causes the body to produce skin 10 times faster than normal people, and there is no cure. One can observe skin of infant with a deep shade of red and body covered with thick, white scales (skin formed into thick patches with large red cracks in between). Skin would be pulled so tightly across her body, that infant's fingers and toes would be permanently shortened and couldn't grow normally. Skin almost entirely covered the ears and nose and eyelids flipped inside out. If infant survives, would be physically challenged for the rest of the life. Because of the disease, Infant's skin wouldn't't able to fight off infections, and can cause serious blood infections.
I found a YOU TUBE of 4 children with this disorder. Its very interesting to watch. The oldest is 18 I believe. Two families with two children each. So much to go through for these children. Actually I think it was a documentary.
There is a girl in USA with this syndrome. You can search "the girl behind the face" on instagram and see how she survives
I tried once before and never could get it on. I’m sorry. I would if someone would tell me how
Hi Joyce. To upload links, simply copy a link and use Share a Link option in the app. Did you face some problems?
Yes I did. I went back to you tube and tried again. The links they gave did not work for me. I tried two different. Maybe if you try going to you tube and searching for - “sisters with harlequin ichthyosis” or search the disease. I think you might find it. It’s out of England somewhere. I wish you much luck!!!
Thanks for giving me the info on the “girl behind the face”. I’ve already looked her up and following her!!!!
@ moniccca, I shared what I knew about the links on another page. Maybe you can find it.
