Eli Thompson was born in March 2015 with an extremely rare condition known as congenital arhinia: he has no external nose, nasal cavity or olfactory system. He was just one of about 40 people in the world with the condition An Alabama boy, known as the “Miracle Baby,” died on Saturday due to his rare condition. He was 2.
Why the trach? Was he premature? Any associated mental deficits? Beautiful child!!
The trach is to ensure an adequate airway. With no nose he cannot coordinate sucking and breathing.