Virsaviya has a rare condition called Pentalogy of Cantrell which has caused her heart to form outside her chest. Virsaviya's heart can be visibly seen beating underneath her rib cage with only a thin layer of skin to protect it. She adds: "When I'm getting dressed, I put soft clothes on to not hurt my heart. "I walk around, I jump, I fly, I run, I'm not supposed to run but I love running." When Virsaviya was born in Russia, doctors warned mum Dari Borun to prepare for the worst.