Hello all! I am meagen. Just trying this app out to see if it can be useful to me. One thing i am curious about is finding others affected by IIH. IIH is an extremely rare brain disease a.k.a psuedotumor cerbri. Only about 30,000+ people in US alone are diagnosed with it. 1 in 100,000 people will get diagnosed as well. I am on of those people. I got diagnosed in 2018, im almost to my 1 yr mark since the diagnosis. Im very well educated about it so far. Does anyone have it? What was your experience? Challenges?