Here is a rare shot of a condition called ichthyosis
Ichthyosis is a family of rare genetic skin disorders characterized by dry, thickened, scaly skin. There are more than 20 types of ichthyosis which range in severity of symptoms, outward appearance, underlying genetic cause, and mode of inheritance.
How long do babies with this condition survive? The eyes? Why?
I came up on a u-tube of 2 families that have children with this condition. Each family have 2 children thinking the odds surely wouldn’t give them a second child with the disease. The odds were against. I wanted to leave a link here for anyone interested in reading about their life. A 45 min watch but so interesting!!! The oldest girl is 20. If anyone is interested maybe I can lead you there and you will know how to share the link.
My pleasure ❤️. And yes definitely, one day i will be able to find some cure to it☺️
